Robin's Wish (2020) Movie Script
It's the instant high
that you get from
when 10,000 people are
laughing their heads off.
What's your brain doing?
What are your neurotransmitters doing?
The human brain an extraordinary
three and a half pound gland that
is like quantum neurology,
quantum physiology.
That the moment you
think you understand it,
it comes up with something else.
Because I don't have an act per se,
but more kind of a cesspool
of consciousness, just ideas.
Moments when I'll be on a
roll, or something will happen
that I'll fire off, and you can't help,
it's like being possessed,
it's like channeling.
When it works it's great, and
what doesn't it's painful.
But when it's working
it's, it's that weird thing
about your surfing and
kind of like you're in,
athletes described it as the same thing
of being oh, it's working.
My name is Susan Schneider Williams.
My husband Robin Williams.
Two sentences, Leonard.
It all happens in two sentences.
We had unknowingly been
battling a deadly disease,
a disease for which there is no cure.
Robin's, the devastation on Robins brain
from lewy bodies was
one of the worst cases
medical professionals have ever seen.
Yet throughout all of this
his heart remained strong.
Unchosen path.
When Robin started
acting out of character,
nearly every region of his brain
was under attack by lewy bodies.
Can you imagine the pain he felt
as he experienced himself disintegrating,
and not from something he would ever
know the name of or understand?
So I hate to have to report this.
The breaking news just in to CNN is that
actor Robin Williams is
dead at the age of 63.
We have just received word from
the west coast, tragic devastating word.
Robin Williams has been confirmed dead.
They believe that
the bay area resident committed suicide.
We do know
that at 11:55 this morning
marin county communications
received a 911 telephone call
reporting that a male
adult had been located
unconscious, and not
breathing inside his residence
in unincorporated tiburon, California.
I felt
tremendous remorse and guilt that
gosh, could have done more,
I should have done more.
I know something must have
been terribly wrong for someone
as brilliant as Robin to
justjump ship like that.
In the immediate
aftermath of Robin's death
the confusion and information
was constantly changing.
Robin Williams
battle with addiction
and mental illness was no secret.
Before the coroner's report came out,
there was a lot of media speculation.
People were assuming the worst.
He's broke, or he's depressed,
or he's just given up.
The highs are highs
and the lows are lows.
And there's nothing sadder
than when a comedian is by himself.
They painted him as the sad clown.
Those close to Williams
believe he had bipolar disorder.
They thought hejust committed suicide
for something related to
unhappiness, drugs, or depression.
And, of course, none of that is true.
On Robin Williams mind
before his death, money.
While it may seem strange...
People fill in the blanks,
so a lot of that was going on.
That last evening I spent with him,
he was completely sober, and not on drugs.
Butjust most troubled by
what he was going through.
I think it's important that
the truth comes out because
there was so many affirmative
things that Robin stood for.
And we want to believe in all of them,
we want to believe in him.
And there's a danger that his
suicide could occasion people
to think oh well, he wasn't
what we thought he was,
we didn't know him after all, but we did.
I felt like I was
somehow being loyal to him
by not speaking about the
struggles that we saw.
I think we felt like that
wasn't anyone's business.
And so the story is one of Robin being
at the mercy of something
that you could not control.
And even worse than not
being able to control it,
not even knowing about it.
It was not till October.
I was called in to sit down to
go over the coroner's report.
There were no surprises about
what was in his toxicology.
I knew my honey was clean and sober.
They sat me down and
said, essentially Robin
died of diffuse lewy body dementia.
What is that?
They started to talk about
the neurodegeneration.
He wasn't in his right mind.
He described how this,
with these lewy bodies
that were in nearly every
region of his brain.
It makes sense why he was experiencing
what he was experiencing,
cognitive movement,
they were all affected,
depression, a fear,
anxiety, hallucinations,
delusional thinking,
major sleep disorders, insomnia, paranoia.
I remember walking out
of that facility down
the steps outside and feeling,
now I had the name of it.
It was the beginning of understanding
what had really gone on.
I was talking to someone I'd met at ucsf,
and she said send me the last two years
of the medical records,
I'll get them to Dr. Miller,
and I know he'll be happy to see you.
Lewy body dementia is
a devastating illness.
It's a killer, it is
fast, it's progressive.
I'm looking at how Robins
brain had been affected.
I realized that this
was about as devastating
form of lewy body dementia
as I had ever seen.
Almost no area was left unaffected.
It really amazed me that Robin
could walk or move at all.
The disease is devastating,
but even more so
when you realize that Robin
did not have a diagnosis.
He did not know where these
new symptoms were coming from.
A disease becomes
progressively irreversible,
unstoppable, and always
fatal, always fatal.
But cures, we're far away from those.
It affects many people, and sadly
one of the outcomes is suicide.
If we had had the accurate diagnosis
of lewy body dementia, that alone
would have given him some peace.
His soul thrived here.
He grew up here, his roots were here.
I mean he started in Detroit but
he went to school here at redwood.
Robin could live anywhere he wanted,
and chose to live in a neighborhood.
Living in marin,
which is kind of like
north of San Francisco,
it's like, it's the idea.
This is it, I don't need to live.
I can't, I mean I don't do well in la
if I was living in a gated community.
He said I want to live
with people, I love people.
He liked marin, it's a
wonderful, beautiful place to live.
He would ride his bikes every day.
You run into him
walking his dog outside.
And you're like oh, he's
a totally normal guy.
Really not that different,
people walking dogs, saying hello.
He's just trying to be normal.
But then on the flip side
like, he's lived a crazy life.
You would never
know he was a superstar.
The throckmorton theater in mill valley
started doing the Tuesday
night comedy nights.
It was just comedy, yet it exploded,
and partly because Robin
Williams lived down the street.
So all of a sudden you've got an open mic,
more or less, on Tuesday that's drawing
250 people on Tuesday, every Tuesday.
The audience will go crazy.
And Robin would come up,
after I already had a show.
And we would do another
two hours of improv.
And this would happen all the time.
And he literally would
just get up at the end
of the night, and he would
just crush it with no content.
Nothing got him off as much as
being in front of alive audience.
And getting to just free float,
and let his brain take
him where he's going,
and react with the audience if someone
throws something in from
there, or just take what
he's saying and do 300 riffs on that.
His mind was just so fast.
I look out there, there's
a little kid out there.
I saw a three year old kid
who could barely use a fork or a spoon.
He's eating blueberries with his hands.
And all of a sudden someone
hands him an iPhone,
he was like.
When you're playing with Robin Williams,
you're not known for how
you neck and neck with him.
You're not known for how you beat him.
You're known for how you
just barely keep up with him.
Look up here Rick,
there's people on the hill.
Hi everybody on the hill.
Sermon on the mount.
Jesus at comedy day?
Jesus at comedy day.
I'll be back.
There'd be improvs wear
I'm on stage with Robin,
and we would sync up, and
to see that in his eyes,
that twinkle, that means we made it.
It's impossible to describe
genius, or comedy really.
You can analyze it, but I
went with him to the two days
and landed in recording
sessions on the Disney lot.
And watching him go back and forth
and do all of these characters.
Let's blow this Popsicle stand.
A doorstop would be a fabulous career.
Not bad, good night Alice!
Out of all of every pore of his being.
And he was so happy and joyous.
Hey, go get them you little crazy guy.
I don't care what I am, I'm free.
Offer void where prohibited
bylaw.
He'd go let's do that
again, I could do that better.
And they'd go what do you
mean you can do better?
He goes no just, let me just run it again.
I think I have an idea, you know.
And they'd go, you think you have an idea?
Good lord, oh my god.
I think the man has to flow.
He has to be able to come in there,
and go against the magic.
He's got his own magic,
and hejust hasn't
found it in himself yet.
Unnecessary use of
reptile, 500 year penalty.
Watching these technicians
desperately laughing
and crying, trying to keep up with him
and not screw up the dials while
they're witnessing true brilliance.
Enough about you, let's talk about her.
She's a honey, huh?
Come on, talk about the features,
her hair, her eyes, her shoes.
Be darling, be witching, beautiful.
When you're in the room
with Robin, it is full go.
Thank you.
Not at all.
Theodore Roosevelt, 26th president of
these United States of
america at your service.
He was a constant spark,
comedic spark, idea spark,
throwing in lines, improvising a ton.
Some of the biggest laughs are things
that Robin invented on the fly.
I remember many many days
where Ben stiller and I
would look at each other,
because we're just watching
Robin Williams, off the top
of his head, just go off.
And that kind of manic, wildly creative
bottomless pit of ideas, that mojo,
that ability, which was like a superpower.
I'd never seen anything like it.
The thing to know
about the brain is that
it's not static, the
connections are always changing.
We call it neuroplasticity.
So you have someone who has a stroke,
a part of the brain is
damaged, it's not coming back.
Some of those patients
get completely better
because the brain rewires,
it has this resilience.
And the determinants of resilience
we don't quite understand, but
high intellectual abilities
to begin with seem to go along
with that kind of resilience.
People who have great brains,
who are incredibly brilliant can tolerate
degenerative diseases better
than someone who is average.
The concept of reserve.
Robin Williams was a genius.
Robin was brilliant, he just new things.
But besides that, his
extrasensory perception
of life, and of people, and of
me, he was a master at that.
You could track it back to
two years before he left.
We'd go to the throckmorton all the time.
He always had an open invitation to go on.
And what started to
happen at around two years
is he started to feel like
he didn't want to go on.
He just wasn't as eager to
meet with people backstage,
or hang out too long in the green room.
It was getting a little bit briefer.
And he didn't, hejust,
there were more insecurities
cropping up for him about going on stage.
There were a couple of
shows where I was expecting
Robin to be there and he didn't make it,
for one reason or another.
So that confidence that he had,
and the ability to go on and play,
he just wasn't willing to
go there as much anymore.
It was starting to lessen.
That was concerning, something's off.
Someone is seemingly
performingjust as they had
for years and years,
and then all of a sudden
there's some very strange
thing that happens.
And that raises concern.
But then the next day they're okay again.
And then over time, those
dips become deeper and deeper,
and we have these fluctuations,
especially in the beginning.
The last thing they probably think of is
that it's a degenerative brain disease.
After that things
were, just life was busy.
He was working so hard on,
"the crazy ones," at that time.
And it was getting more
and more difficult for him
to remember his lines, and he was getting
more and more insecure
about his performance.
Silence.
I know that he was
sometimes having trouble
with his lines and stuff
up front, but he was really
always able to power
through, and be that guy.
And once you hit editorial you'd find
the Robin Williams that you
know and love was always there.
I propose we redo that 1972 spot,
and take a chance of making people feel.
For my projects we, we
really stick to the script.
But, when you have Robin
Williams it would be folly
not to let him do whatever he wants to do.
M sauce secret sauce m
m sauce you love it
sauce sauce you love it b
m Booty shake Booty shake
Booty shake Booty shake m
b you didn't give me
enough ketchup packets m
oh my god.
Every take would be different.
Ad-iibs, and these comic nuggets would
come from Mars, or
somewhere, Robin's head.
But a lot of them were gold.
So I think that he
may be a little slower
out of the gate, but he finished strong.
He'd managed to kind of power through it.
He'd get up and he'd become this guy
that you knew, remembered, and loved.
Can you be serious?
Well maybe for a second No see.
Sorry.
It's not easy to do a
network television show.
On top of that he had,
"night at the museum."
And he's doing double duty.
The third movie, the last movie,
I would say a month into the
shoot it was clear to me,
it was clear to all of us on that set that
something was going on with Robin.
That's an experience that
I've not spoken about
publicly ever.
We saw that Robin was struggling
in a way that he hadn't
before, to remember lines,
and to combine the right
words with the performance.
When Robin would call me at 10 at night,
at two in the morning,
at four in the morning,
saying is it usable,
is any of this usable?
Do I suck, what's going on?
I would reassure him.
And so I said you are still you.
I know it, the world knows it.
You just need to remember that.
My faith in him never left,
but I saw his morale crumbling.
I saw a guy who wasn't himself,
and he thought that was unforgivable.
Lewy body dementia
is particularly tragic
in the way that it increases anxiety,
increases self-doubt, causes delusions,
misbeliefs that have never
been present in someone.
And imagine how hard that is for someone
who doesn't even realize
that they're suffering from
a degenerative disease, something
that is slowly taking away
the function of neurons across the brain.
I think the thing that
made Robin most special
about this spectrum of abilities he had
was the solid guy in the middle.
That's who you are in the
middle of all that other stuff.
These things come and go, who are you?
Do you stay you?
What will you become?
We met on the day he
arrived in New York City.
Robin really was different,
I could see in the beginning.
Robin and Christopher reeve came into my
third year class atjulliard
as advanced students.
Christopher was my
roommate, and Robin became
very quickly my very best
friend that I ever had.
Yeah, we were hippies from space,
and he's an Ivy league preppy.
I'm telling you, the three
of us had some good times.
He wasn't a comedian back then,
he was a very serious actor.
I went to New York and
went tojulliard which was
classical training, but
very much to be a thespian.
For me it was a wonderful thing,
number one to be in
New York, but training,
and also to get that type of training
where you get the combination
of classical and the hardcore.
And he was so believable visually,
but as the way he used his voice.
Man he was amazing.
And it blew the faculty's
mind as well as the students.
But he was always funny.
We'd be rehearsing lines
and he would go off on
my liege, thou cough on thou knowest not.
And he would make up lines
in iambic pentameter.
But, of course, you know r
rated lines, x rated lines.
It was hilarious.
It was hard for him because there was
a lot of politics going on
atjulliard in that time.
He left at the two thirds of
the way through that year.
I would go
back to San Francisco,
and try and find acting work.
And then took up stand-up comedy as a,
'cause I couldn't find acting work.
Holy city 200 was
the clubhouse for all the comedians.
If you could get on a set when Robin
was promising to be there
that night, you were gold.
They packed the place.
Ladies and
gentlemen, Robin Williams.
He drained every scintilla
of laughter out of that crowd.
But when he did that
crazy stuff he did on stage,
I think it let everybody
else say, well heck,
told everybody else yes,
crazy stuff is acceptable.
Robin is doing this in the '70s.
I mean 10, 15, 20 years in some cases
before some of this is
happening elsewhere.
He even came down to
Hollywood and got up on stage
at the comedy store and the improv.
And it was like a land mine had come in,
I'm not a tuna, I'm not a tuna.
Is anyone here tonight on drugs?
Okay, a quick test right now.
If you are, it's okay.
Let me ask you for a
sip here, dear brother.
The reverend likes this stuff here.
He was performed at the comedy
store and he was hilarious.
I just watched him,
and I walked backstage,
and he was sitting on the
steps behind the stage.
I saw him sitting alone.
It seemed so extraordinary to watch a guy
completely demolish an
audience, and then seem
so distant from what he had just done.
No celebration, just like exhausted
from pouring out so much energy.
I got a phone call.
It was Robin.
He was up in Vancouver, and he was
working on, "night at the museum," three.
And he was he was having a panic attack.
And he could not calm himself down.
He's having such a struggle
rememberingjust one line.
If you're life depended on it...
Say that, say that, believe
it or not you took a town?
He got very frustrated.
I remember him saying to
me, I'm not me anymore.
I don't know what's going
on, I'm not me anymore.
His mind was not firing at the same speed.
That spark was diminished.
The joy was sometimes not there.
I had to work harder editorially
to create it on screen,
because it wasn't always
there in the same way on set.
And I didn't resent that.
It was more taxing, it took
a lot more time and energy.
But if that's what my guy needed,
then that's what I was gonna give my guy.
The one thing that did
bother me was the arm.
I'd frequently see him clutching his hand
close to his chest a little bit, or he'd
put it in his pocket and
kind of mask certain things.
We knew that he was fragile.
And the deal was sometimes
we had to let Robin
be alone, take a minute, catch his breath,
particularly at the end of shooting.
The last time I was
with him I was on set,
we were doing, shooting
a scene in a church.
It was called glory of love.
Thought I saw the box move.
And we had a room for him where he could
go between takes, and
I went into that room.
We talked a little bit about the scene.
And he asked a few times
how's it going, is it working?
But the subtext of it was
how am I doing, am I working?
His sense of security and
confidence in who he was
and what he was, there was
something eroding within him.
We didn't know what.
Yeah, you got to kill a little.
Because we knew he was getting tested,
he was feeling infirm or not himself,
and he was getting tested.
And I think that those tests included
brain scans and nothing was showing up.
It wasn't like he's my son
and I can say all right, time out.
I'm gonna pull you out of this because
you're getting sick,
and you need some rest.
And I don't care what the
teachers say, no no no.
He's signed up, these are
contracts you don't break.
This is this, this, and the other thing.
What can I do?
And Robin, he aimed to please.
Every day every minute,
he aimed to please.
If the studio or the
network came begging for
more interviews and more publicity,
he would always give it his all.
His intellect, his mental acumen
were or so beyond ours that
it could be compromised
a great deal probably,
and he would still be playing
a step ahead of the rest of us.
How much of the script
in the show is you...
23.5% improv.
Good, that's
exactly what I wanted...
She hadn't finished
the question yet, Robin.
But I knew where she was going.
The new dancing.
There's one dance number,
and it's a ballet.
So lewy body dementia, like
all degenerative diseases,
is a problem of plumbing and circuitry.
These degenerative diseases
are caused by misfolding
of proteins within neurons,
or the parts of the brain
that allow us to move, think, and feel.
We have 70 billion neurons,
they slowly disintegrate.
This bad protein, Alpha-synuclein,
relentlessly picks off neurons
in a specific neighborhood,
spreading through that neighborhood,
and then moves into different
neighborhoods in the brain.
And then finally it swept
across the entire brain stem.
Almost every neuron in that circuit
with sleep, mood, anxiety,
cognition has been affected.
And that is really the
late stage of dementia
with lewy bodies, the stage
that no one can get out of.
Soldiers have very
refined bull detectors.
And to see that instantaneous connection
that Robin was able to make.
Good evening, Baghdad!
Thank you!
What he understood
about the American soldier
was where they came from.
Some of these kids are dying,
they're getting wounded.
He had a way of connecting with them
that just made them feel so good.
He was there for them,
and they understood that.
There's combat hardcore stuff,
and then it's a lot of waiting around.
And it's that stuff where people need
things just to fight the boredom.
And that is most important.
And I think most people are just
kind of shocked that someone showed up.
Like why are you here, man?
Afghanistan's six times, Iraq five.
Yeah, it's crazy.
And you haven't fixed it
yet, that's disappointing.
You know from going there,
that's the best audiences in the world.
I do have a story.
I have, I've got a ton of them.
A young man who was
very seriously injured,
and his girlfriend had decided it was just
a little bit too much for her to handle.
And she had just left, and
she was not coming back.
She was on her way to the airport.
So we walked in, and you could
tell that he was in despair,
and how afraid that he
was in going forward
that he would never
have another girlfriend,
about what his life was going to be like.
And Robin pulled up the his
chair right beside his bed,
and started talking about fear.
He went into some very personal things.
I think we probably
stayed an hour and a half.
And we walked out, and Robin actually said
boy that was a tough one.
He said because for all of
us, confronting our fears
is a very difficult thing to do.
And he said I'm sure nobody ever
thinks I'm afraid of anything.
That was a big topic of conversation.
Was their spouse going to stay with them?
Were people going to be
looking at them differently?
He actually talked about
those kinds of things.
He was willing to sit and talk
about some of his own fears.
And I'll never forget one day and he said,
oh Elaine, that was a tough one.
And he said he doesn't
know that, but I have been
so close to what he was
talking about myself.
It was early may, and he came home.
And it was like a plane coming
in with no landing gear.
His resources were just spent.
We were supposed to go to some friends and
Robin couldn't, he
couldn't get out of bed.
It was becoming more of a normal that
Robin's not feeling well.
And I can't tell you why.
We're just gonna stay home.
His delusional looping
would just kick in at night.
We'd gone to a birthday party,
our dear dear friend mort sahl.
That night Robin was up.
And he started talking
about he was so afraid
that mort was not gonna
make it through the night.
And so we started to have
this discussion again.
It's like 12, one o'clock at night,
and it goes to like 3:30 in the morning.
And I mean it goes, we're
covering all the bases
because he's convinced that he should
go to mort's house right
now and make sure he's okay.
That night he was texting mort.
Like, are you okay, are you okay?
And mort's asleep, most likely.
And so because he wasn't
getting a response from mort
at two o'clock in the morning,
he wanted to go there.
So this was a typical night for us.
There is something wrong.
There is something not right here.
And he said I just want
to reboot my brain.
I just want to reboot my brain.
We started to see some physical things
happening to him, and he
was trying to hide it,
with his arm and things like
that, so we started to see it.
One point he came up,
and he was in a t-shirt.
His ribs were actually showing.
I grabbed his skin.
Robin you're really getting thin.
He said yeah boss, I've
gone to the doctor.
But I don't know what it is.
When he came to a party,
and we were all there,
the comedians were, they were flummoxed,
they were overwhelmed.
And he was off lurking
in the corners alone.
I mean can you imagine?
You're at a party, and where's Robin?
You look and he's over in the corner,
fiddling around with a
bush or something like.
Well this is not good.
He was suffering, and you could tell it.
I tried to get him
to go to a James Taylor
concert with us, and he
says I don't think I can.
I go, I mean I know you're
tired but I'll drive,
and I'll come get you,
and the ticket's on me.
He goes no I don't think
I can leave the house.
And that kind of scared me a little bit,
because he was serious,
like yeah well okay.
And I didn't really press him on it.
But I mean he was leveling with me,
that I don't think I could
leave my house right now.
And his speech patterns
changed a little bit.
But I don't, it's hard
for me to talk about.
I knew there was something going on.
I spoke with Robin almost
every day, or text and stuff.
I witnessed his processing
reality completely
different than the way everybody else.
And it just, the only
reason I talk about that is
his brain was giving him misinformation,
complete misinformation.
Going from where Robin and I had
our world together,
that was our sanctuary.
It's so lovely to see that
you're so happy and everything.
How did the two of you meet?
Seriously?
Outside an apple store.
It was a busy Saturday, I
had to go to the apple store.
And I started heading to the back,
and I see this man dressed in camo.
He was just smiling at me.
And I thought, I think
that's Robin Williams.
And I thought, all right
I'm just gonna go say hi.
I had camo pants on, and she said
how's that camo working for you?
I went, really good
obviously, you thought.
We just started talking and
we had the connection of 12 step stuff.
We both had crazy
drug and alcohol days
earlier in our lives.
He knew enough information
to be able to find me
if he wanted to, at one of
the regular 12 step meetings.
The next Tuesday night, I
was at my regular thing.
I looked around the
room, I didn't see him.
I thought oh well.
Midway through the
meeting I turned around,
and there he was in the back of the room.
Then I turn around real quick
and thought oh my god, he's here.
But it was kind
of sweet, and then I was
like off and running, it
was kind of wonderful.
He told me met this girl
and she knocked him out.
He told me it was his love.
You know men don't usually
say that to each other.
Yo, most beautiful.
Good morning, good morning, good morning.
I'm just sending you gigantic love.
And I hope you're wonderful.
I imaging right now your
hands are covered in paint.
Oh, lucky hands.
Paint on, paint on my little Picasso.
Paint paint, paint paint.
Louisville signing off, bye.
My partner in crime, who
we've been walking sober,
clean sober together and enjoying
all the rawness and
authenticity of life together.
Like, this is Susan and
Robin, and it was great.
They were like
I'm going to raise up.
Let me lift myself up to love.
We just had a theme, a
way of approaching life
that was so in sync, we just
were like two little kids.
We were looking at the world together,
almost like through each other's eyes.
That was like having a best friend,
where you could really
explore life together.
Yeah, we dated for about four years.
We'd had promised rings that
we'd worn for a year already.
Doesn't everybody do
promise rings?
I don't know.
We knew we wanted to get married.
October 22, 2011.
It was storybook.
Wow, I'm just picturing him.
He sure looked good.
Part of my wedding vows
was really all about
loving him as he is, I have
no desire to change this man.
And you had
your honeymoon in Paris.
It was wonderful.
The great thing is in Paris, see,
all the paparazzi like
wildlife photographers.
All of a sudden you look over
they're like, Robin kiss her.
Kiss her first good, no get away from me.
Kiss her, kiss her, do it now.
The comedian will now attempt
to kiss the tall woman.
He had come home from,
"night at the museum."
He was basically home for a week.
He was exhausted, absolutely exhausted.
We were looking at like a week of testing.
The calendar was just booked.
So we had this day at
the beginning of it all.
I said why don't we go
out to Tennessee valley,
go on a walk out there, which we loved.
We just loved our walks.
This is when I realized my honey
had never ever been on a picnic.
It was a pretty windy day.
But as we got out there there
weren't a lot of people and
it was so nice to have
space around us in nature.
We went over to the rocks
and ate our sandwiches.
And it was just us, and it was peaceful.
It was one of those moments
in the midst of this
frenzy of trying to find
out what's going on.
Like the drumbeat was
getting more and more.
And he was depleted,
he was so so depleted.
And hejust put his head down in my lap.
And I just stroked his hair.
He just laid in my lap
for like a couple hours.
Oh that guy was tired.
So the first time the
Robin came into my shop,
it was in 1983, and it was
shortly afterjohn belushi died.
Whenjohn belushi passed away,
it devastated Robin.
John was crazier than anybody.
And but man, did he pay the price.
It hit him like a sheet of cold ice.
He pulled out of a dive.
He stopped everything but
white wine for one year.
And he didn't go to aa.
And I mean wow, how are you doing this?
He goes just because I have to.
He didn't want to die.
And of course he'd
always been really physical.
He was an athlete, he was a good athlete.
He took up cycling, and he
started riding more and more.
And we started seeing him more and more.
You are a keen cyclist?
Yes sir, I am a bike-sexual.
Yes sir, I like to ride the bike.
I mean for me it's my meditation.
It's what I do, I can get
on my bike and ride about
sometimes 20 miles,
sometimes 40 or 50 miles.
And it's great, it's beautiful.
He said that cycling was
the closest thing to flying.
And it allowed him to free himself
from all the things that
went on in his mind,
because his mind was so active, right.
Robin and running, and
biking was always in struggle.
You have to push yourself, you
have to challenge yourself.
And Robin, as an artist,
challenged himself to do roles
that were like stretching himself.
He wanted to prove that he wasn't
just a comedic actor, he was an actor.
When you're improvising,
you're going out, you're looking.
I'd be going, talking to flowers?
And how you doing, please cough.
When you're playing like
that, you're going out.
But by stopping that it
forces the energy to implode,
and you find you explore yourself,
either memories or different emotions.
Captain, my captain.
Sit down, mister Anderson.
"Dead poets society,"
almost didn't happen.
Because they really just
wanted him to do it.
The writer asked me how could we get Robin
to reconsider this, and maybe do this?
I said well, you need to involve
him in the creative process
and at least give him a voice
in choosing the director.
I said make him a shortlist.
But Peter Weir was at the top of it.
And he said I'm in if
you can get Peter Weir.
And it happened.
Thank you, boys.
Yeah, he gave me a sweet gift.
When he's looking at the yearbook
from when he was a student.
Gentlemen.
We were just looking your old annual.
Then the kids show him this yearbook.
He gets down on his knees, and just.
No, it's not me.
Stanley, the tool, Wilson.
Stanley, the tool, Wilson.
Which was his nickname for me.
What's the dead poets society?
So I'm sitting with him at the premiere,
next to the heads of
Disney and he's smiling,
and he wouldn't look at me.
But I started crying when this came on.
And that was his thank
you to me for helping.
And he was brilliant.
Invincible, just like you feel.
The world is their oyster.
He always wanted to
push himself, he did.
And I think that's incredibly admirable,
because you don't have to do that
when you're wealthy and famous,
and people the world over love you,
and want you to make them laugh.
We liked to go play
basketball with a local group
that helps developmentally
disabled adults.
His neurologist, who also attends that,
had not seen him since December.
When the suspicion about
his, the shaking of his hand,
it was keep an eye on
it, but at that point
it was so minimal maybe it's because
of this previous shoulder injury.
Well basically that
night, that doctor made
a visual diagnosis from way across court.
All he knew is that we were
gonna be going in to see the gp,
when he was told he had Parkinson's.
And they're saying it's early to mild.
And that's great, so okay
we get on medications.
We'll figure this out,
you'll get it adjusted.
They were saying 10 good years.
I could see he wasn't buying it.
Robin got to ask these questions,
which at the time seemed like,
he asked am I, do I have an Alzheimer's?
Do I have dementia?
Am I schizophrenic?
And the answers were no, no, and no.
The real depth of these
symptoms, he only knew.
The rest of us were
working with what we could.
In Robin's case there was
a focus on his movement,
but I think internally for
Robin, this was only a tiny part
of the symptoms that he was experiencing.
Another very early feature of dementia
with lewy bodies is visual hallucinations.
They often believe that these
hallucinations are real.
So for Robin, learning that he
had Parkinson's disease was not enough.
He's an old friend of
mine, and a former classmate
atjulliard school in
New York, Robin Williams.
I'd like to give you that.
Look at that.
Boy, somebody's fantasy.
Robin and Christopher
were very good friends.
Christopher is a preppy for viewing,
although that was our
slightly younger brother.
The three of us were brother Williams,
brother Wilson, and brother reeve.
Christopher, we went to see him when
he first had this accident.
He'd just had the accident and
there were people making decisions
whether or not to keep
him on life support.
Robin went in disguised as a
doctor in the emergency room.
I said I was a Russian proctologist.
And most of the other doctors went, oh no.
And he looked up, and he kind of
went hey brother, what's up?
And I said would you mind?
I'm just gonna do a brief exam.
Like what you said, if you feel
two fingers it's your luck.
And he laughed.
And he said hey brother, what's happening?
And it was that idea of
even in the face of that,
and it helped, I mean
he's an extraordinary guy.
First one to show up down in Virginia
when I was really in trouble.
He came here to Kessler
one afternoon, and just.
Thank god I wear a seat belt in his chair,
because I would have fallen out laughing.
When Christopher, we went to see him
when he first had his accident.
We both talked and said I
never knew he was this strong.
And Robin didn't either,
and he says I don't think
I could go through that,
and I wouldn't want to.
He looked very frail when he
came back from the museum picture.
He used to come over like every afternoon.
He'd sit in that chair in the corner.
He mumbled about it but,
he never described this severity
to me of losing everything.
I'd trick him, even when he got depressed.
I'd say, well a lot of times
I want to jump off the roof.
Really, he'd say.
But, I said yeah.
I said you can'tjump off the roof because
you can't leave Susan alone.
And as soon as I got
anywhere near saying her name
he'd go ooh, ooh, admiration all the time.
That's the thing he
kept getting over to me
all the time and saying,
now I finally got it right.
So he saw tremendous irony
in getting sick.
He had these introspective moments,
and a lot of depression as it approached.
But he didn't verbalize that to me and,
he just wasn't laughing a lot.
People believe that there is psychology,
and then there is neuroscience,
and they're not the same.
But in fact it's all related to
how our brain circuits are working.
This is very hard for our society
to understand and grapple with because we
have a different way of thinking
about psychiatric disease.
There's not a realization
that the chemical changes
in the brain are responsible
for the psychiatric symptoms.
Lewy body disease, it is brain
circuits that cause troubles
that people assume are behavioral,
not potentially related to a disease.
Someone has Parkinson's
disease, and they have shaking,
and they can't walk then,
oh that's clearly a disease.
But, in fact, it's pure
semantics, there's no difference.
It's just different
circuits are being affected.
It flows over someone
like a massive wave.
No matter how moral, ethical,
good, brilliant someone is.
When they get disease of
the magnitude of dementia
with lewy bodies, they get very sick,
and they change enormously
in a psychiatric way.
It affects sleep very early.
This is another very hard
part of lewy body disease.
When they're asleep they suddenly act out
their dreams we call rem behavior.
They can strike out during a dream
and actually hit people at night.
The lack of sleep had been building
very intensely since December.
He's thrashing at night now,
which is a parkinsonian type symptom.
So now what was happening,
you know when you first fall
asleep, you start to go deep
pretty quick if you're tired.
He would go honey, what
did you think about,
like in a daytime voice, was loud.
No one was getting sleep, it was just
impossible because of
the delusional looping.
And then the degree to which
the paranoia came in, it was so drastic.
He's just going from room to
room, literally watching me.
He's making a lot of phone
calls and texting people,
and questioning, I'm
sure I know it was a lot
about questioning my loyalty to him.
And then I'm like back in the
studio, and he's watching me.
And he's standing there
in a frozen stance.
And he wasn't moving.
And then he'd come out of it,
and he was so upset with himself.
There were other scenes going on for him,
there were other ideas about us.
What part of this is is free will?
He had this awareness of what
he was doing, and that pained him.
Because he knew it wasn't
us, it wasn't right.
There's that core of
that person that is still
completely maintained, and
they struggle with this.
And they struggle with
how they're changing.
And they often don't have a good logical
conclusion about it, so it's very hard.
Robin is not getting enough sleep.
The therapists are like,
not getting sleep can be really dangerous.
When we were told to sleep apart
because he needed to get sleep,
he came to me and he said,
does this mean more separated?
For someone so brilliant
to say something like that
is such a mismatch of reality.
Five minutes later he
was back, and he realized
no we're in love and we're married.
There's no, I'm not leaving him.
Robin was in the house
visiting and he wanted
to look out the back window,
look at our boat dock,
and our boats, and get a different view.
And so he looked out the back window
here out of our sunroom.
He stood there, and stood
there, and stood there
for about 10, 12 minutes motionless,
didn't say a word, just
stood there and looked
for the longest period
of time, way too long.
I finally said Robin,
let's go back outside.
In the middle of the storm,
we kept trying to stay in the center.
By now though we were seeing
the therapist every day.
It's bike rides, it's 12 step work.
Meditating together helped a little bit.
We went to a hypnotist at Stanford.
And god bless the man, he did everything.
I would come in the room
and he'd be sitting there
doing this thing, and it was part of
the deal to like hypnotize yourself.
It kind of worked a little
bit, but it would always
be temporary, but he would keep trying.
He was a freaking warrior.
The way that he was able to
battle the inner turmoils,
the inner fears, he was blessed
with what his heart was capable of.
In the midst of fear.
Go your whole life never
knowing how you look,
and then there you are.
You get hungry, you get
stupid, you get shot and die.
Then you get this quick
glimpse of how you looked
to others, to the world around you.
It's never what you thought.
He could do what nobody else could do.
He'd do what very few artists
have ever been able to do.
He was just, he was beautiful.
I remember the day I
found out, I was thrilled.
Robin Williams is gonna come do,
"bengal tiger at the Baghdad zoo."
He's the tiger.
The fact is tigers are atheists.
All of us, unabashed.
Heaven and hell, these are
just metaphorical constructs
which represent hungry and not hungry.
I would see him waiting after the play,
after we come out from a
two hour and 20 minute show.
And he's waiting for every single person
to get their picture, and
to sign their play bill.
And I learned Patience,
and I learned compassion.
He's everything you want
from a fellow artist.
I'm hot in the green
room at mill valley.
He'd go in and extend these mercy calls
to the comedian's in the green room.
They all looked upon him as a hero.
And he's more than generous.
Wait, can we get you doing
the guy who hit our car today, please?
No dude, no dude, no, it's nothing.
Dude, you
hit my rental car, man.
No dude, I did but nothing happened.
It's like we've been here
before but nothing happened.
Do you have insurance, maybe?
Not at all, thanks.
That last bike ride with Robin,
I asked him at the beginning
of the ride, you look beat.
Are you sure you're okay for
a ride, you look exhausted?
He said no he needed
it, he really needed it
and was ready to do it, but
it was clear he was off,
off in a way he had not
ever been off before.
Much slimmer, just sort of not there.
A couple of times he was over in the Lane
way more than he should have been,
way more toward the center of the Lane.
He asked a lot of weird questions,
seemed oddly distracted.
Turn around and he'd say stuff
like, what time you got boss?
Never asked me that on a ride ever before.
I'd day I don't know, we left at one,
we're halfway through, 1:30?
Thanks boss.
30 seconds later, what time you got boss?
45 seconds later, the same question again.
There were several other questions he asks
that were sort of odd,
and didn't make sense,
something along the lines I think
we should maybe be getting back.
Yeah, we took one loop,
we're getting back,
that kind of stuff.
Before you notice it,
he started to leave me.
He just was 20 yards, and
then 40, and then 100.
This has never happened on a ride.
And all of a sudden he
was 100 and some yards,
and I couldn't catch him.
I busted butt to catch
up, I couldn't do it.
I mean he pedaled all
the way to the house.
And we got to the house and he said,
hope you don't mind boss,
but I got to get in today.
I got stuff to do.
And I said fine, and he
hustled in the house.
Uncharacteristically,
around 9:30 in the evening,
Carol noticed Robin and
Leonard standing out front.
I went outside, and I asked
if everything was okay.
And he said yes, I'm okay,
just sort of a pat answer.
And then he said boss,
I really need a hug.
And so I gave him a hug.
And he started to cry at that
point, put his head down.
Sol put my arm around his shoulder.
And then I asked him
Robin, Robin, are you okay?
Is anything wrong that I could help?
Are you in pain?
He said, no boss.
He talked about family, and
what was going on in his life,
and some things that I think
he felt I would keep private.
It took about 15 minutes,
he said, bye boss.
I said I'll see you
tomorrow, and he walked home.
We were gonna try to get
to bed at a decent hour,
and we stayed up for a little while,
which is what we did that week.
When sleeping apart,
it's like well, we'd stay
in our bed together until
it was time to go to sleep.
Again, I'd read to him.
Then it was just time, it
was time for sleep and he,
he went into his office,
which is right by our room.
And he went back there a
couple times to get things.
And I saw he had his iPad, and
I thought this is really good
because he hasn't wanted to read,
or do anything in along time.
We just said goodnight
to each other, you know.
Good night my love.
Good night my love.
We'd been meditating
every morning together,
so when I got up and he wasn't up yet,
I thought oh my god the door
still closed, he's sleeping.
He's sleeping, this is really good.
His assistant showed up,
'cause I had some work stuff to go over.
And I had to take off,
and I just told her,
I said text me when he's awake.
Apparently he had slept in.
And they couldn't figure
out why he was sleeping in,
because it kind of wasn't him, right.
And they tried to go in the
room, and it was locked.
Then I got a text saying
he's not up, what should I do?
I knew, I just knew there was something
terribly terribly wrong,
that wasn't right.
And I just texted, wake him
up immediately and call me.
She called me back.
Susan had just come back.
Dan and Rebecca were outside the house.
The police were showing up,
and they didn't know what was going on.
Sister came in the kitchen
and said how are you?
And I said I'm fine.
She goes oh so, oh my god you don't know.
And then she told me.
I was upset with a Tsunami of grief.
I'm driving back on
this day three years ago,
and a reporter from a tabloid
called me on my phone.
I don't even know how they got my number.
And said do you have any comments about
the death of your friend,
Robin Williams, by suicide?
And I threw my goddamn phone
across the car and kept driving.
I remember very distinctly,
we were standing out front,
and you could hear a helicopter coming.
He said, okay here they come.
Whole bay area
felt like a sledgehammer
had hit it in the head
that day, and New York too,
and Hollywood, and everywhere.
It was like a war zone,
helicopters circling,
news vans pulling up, there
are big satellite dishes,
and they're all setting up cameras,
they're knocking on our
door asking for comment.
It got pretty crazy around here,
like the global media descended
on this little cul-de-sac.
How everybodyjust wanted their peace.
We felt that it was a
huge invasion of privacy.
This was a horrifically
tragic event to happen
to normal people that are our neighbors.
We also had fans of Robins that
just wanted to come and pay tribute.
And they would stand peacefully
in front of his house,
and lay flowers down, and
just pay their respects.
It's like really having
a limb or something ripped from you,
and you can't heal it right away.
I just, I remember walking
out of that facility
down the steps outside and feeling
the last year and a
half of really hard work
that my husband and I went through,
I had the beginning of an answer.
I started digging in
for about the next year.
You can't come back
from lewy body dementia.
There is no cure.
Depression you can come back from.
He had come back from
that earlier in life.
Clumsy as it was, not in
the right state of mind,
due to the tricks that
the disease plays on you.
And the lack of sleep, and the everything.
But I think hejust probably,
somewhere in his brain decided
I don't want to bring
everybody down with me.
I don't want to spend a year
or two going down this path.
Maybe he didn't have quite
that level of consciousness,
but knowing Robin, I want to ride my bike,
I want to be with my beautiful
wife, I want do comedy.
These things will probably all be
off the books in a very short time.
I just know that he finally one day said
I'm not gonna go where this is taking me.
But he's just so joyous, and then
there would have been nojoy in his life.
No, he wasn't ready to go,
he wasn't ready to go at all.
And he stuck around longer
than he felt like it.
I mean I just know him, because he wasn't
ready to say goodbye to Susan, or to life.
When someone gets sick like that,
because it's so confusing, it's
not their heart that's sick.
It's the mainframe, it's the computer.
And that's very different, very different.
Lewy body gives nobody
a chance to prepare.
The psychiatry is the disease,
it's the manifestation of
the disease in the brainstem.
I think in this country
this is a big problem
that mental health and
neurology are seen as separate.
In fact, it's all abnormalities
in brain circuits.
When your brain is not functioning
to allow you to be a
fulfilled human being.
There's a tendency to blame people
for their behaviors and their illness,
and a certain mindset
around disease that people
are responsible for their
own disease, they aren't.
I think there's a blame free world,
just like when someone
has cancer, no blame.
Robin Williams
widow is speaking out
about the beloved comedians tragic...
Speaking out for the first
time since he took his life...
Susan Williams is breaking her silence.
It's been a year since his death.
I see you're still
wearing your wedding ring.
How are you doing?
I'm doing okay.
It's been a year of grieving,
and it's been a year of really
trying to get to the bottom
of what killed my husband.
Susan Schneider Williams wrote
an editorial for thejournal, "neurology."
For her first TV interview
since writing about
Robins health struggle.
People think your husband
killed himself because he was depressed.
Everyone thought that
he died from suicide
from depression, but that wasn't the case.
No, Robin did not die from depression.
Robin had a deadly disease,
and it's called lewy body dementia.
Everybody deals
with grief in their own way.
The part that needs the focus
and attention is let's cure this disease.
No one should have to go through that.
No one should have to
feel the level of pain
that Robin felt, and he's one of millions.
But what she's done
is educating everyone
that cares to know what really happened,
the real story about his last year.
Autopsy
reports diagnosed Williams
with diffuse lewy body dementia.
Lewy body dementia.
To a form of dementia.
He had what's
known as lewy body dementia.
Which was
discovered only after his death.
When you don't have
a diagnosis, and you're
going down these trails of trying
to find out what's
going on, that is scary.
The terror of where's this coming from?
Robin asked do I have
dementia, am I schizophrenic?
And okay now, right, is that clear or not?
This is what other
families are going through,
an example of what's
going on in many lives.
Having a diagnosis would
have meant everything.
Doing the press for that
last movie was really,
I mean it was very
complicated emotionally.
And to be really blunt, I'm
really proud of the fact that
there were 200 people
on that set every day.
And not one of them spoke to anyone ever
about the struggles we saw Robin enduring.
But it no longer feels
loyal to be silent about it,
but maybe more loyal
to share without shame,
without secrecy, that
yeah this guy was hurting.
He was going through something that
he didn't have a name for yet.
And it doesn't bring Robin
back, but it does give clarity.
Because a completely new
variable was entered late into
the equation of Robin Williams
life, which ended his life.
The Robin that we watched all those years,
the man who put himself out there,
the man who went overseas
to entertain troops,
the man who would entertain
the crews on the sets,
the man who'd hug and
hold on to his friends,
that was very real.
After he left, in his bedside table,
there was a few items, just a few things.
And every once in a while I
would pull that drawer open
when I missed him, andjust
wanted him to tell me something.
I opened up that book, and I was like wow.
I remembered that when we were talking
about what we wanted to,
what we wanted to be able
to leave as our legacy.
And for Robin it was that he wanted to
help people be less afraid.
When you get to know
Robin, just as our friend
and our neighbor, like all of us knew him,
that's one thing, but when you actually,
there's a realization about the impact
that he had on a global basis.
The last scene for the
night at the museum franchise,
is Robin and Ben stiller
saying goodbye, and knowing
that they are probably not
gonna see each other again.
That was the scene.
We didn't realize that that was real life.
It's time for your next adventure.
I have no idea what
I'm gonna do tomorrow.
How exciting.
Bye, Teddy.
Farewell, Lawrence.
If you saw his movies, Robbins movies,
you saw one side of Robin.
But the biggest blessing is
who he was as a human being.
He was a loving soul,
and that was who he was.
He was totally open, you know.
And he understood the bigness of love.
Oh man, this guy, I mean I
feel around him all the time.
There'll be a moment when
I just burst out laughing.
I hear his voice in my ear.
It's just one of the joys
of my life, if not the.
I mean that was the best friend
I ever had, I mean truly.
It was just the, it was
the ride of a life, man.
I just love him so much.
Yeah there's a sadness
and then you have to go,
then there's also, there's also hope.
Sadness is always like,
you wish they hadn't
happened but they did.
And the purpose is to make you different.
It's what they call the Buddhist gift.
It's that idea of you're
back, and you realize
the thing that matters are others,
way beyond yourself.
Self goes away, ego bye bye.
You realize there are a lot, a lot of
amazing people out there
to be grateful for,
and a loving god, and that,
other than that, good luck.
That's what life is about.
that you get from
when 10,000 people are
laughing their heads off.
What's your brain doing?
What are your neurotransmitters doing?
The human brain an extraordinary
three and a half pound gland that
is like quantum neurology,
quantum physiology.
That the moment you
think you understand it,
it comes up with something else.
Because I don't have an act per se,
but more kind of a cesspool
of consciousness, just ideas.
Moments when I'll be on a
roll, or something will happen
that I'll fire off, and you can't help,
it's like being possessed,
it's like channeling.
When it works it's great, and
what doesn't it's painful.
But when it's working
it's, it's that weird thing
about your surfing and
kind of like you're in,
athletes described it as the same thing
of being oh, it's working.
My name is Susan Schneider Williams.
My husband Robin Williams.
Two sentences, Leonard.
It all happens in two sentences.
We had unknowingly been
battling a deadly disease,
a disease for which there is no cure.
Robin's, the devastation on Robins brain
from lewy bodies was
one of the worst cases
medical professionals have ever seen.
Yet throughout all of this
his heart remained strong.
Unchosen path.
When Robin started
acting out of character,
nearly every region of his brain
was under attack by lewy bodies.
Can you imagine the pain he felt
as he experienced himself disintegrating,
and not from something he would ever
know the name of or understand?
So I hate to have to report this.
The breaking news just in to CNN is that
actor Robin Williams is
dead at the age of 63.
We have just received word from
the west coast, tragic devastating word.
Robin Williams has been confirmed dead.
They believe that
the bay area resident committed suicide.
We do know
that at 11:55 this morning
marin county communications
received a 911 telephone call
reporting that a male
adult had been located
unconscious, and not
breathing inside his residence
in unincorporated tiburon, California.
I felt
tremendous remorse and guilt that
gosh, could have done more,
I should have done more.
I know something must have
been terribly wrong for someone
as brilliant as Robin to
justjump ship like that.
In the immediate
aftermath of Robin's death
the confusion and information
was constantly changing.
Robin Williams
battle with addiction
and mental illness was no secret.
Before the coroner's report came out,
there was a lot of media speculation.
People were assuming the worst.
He's broke, or he's depressed,
or he's just given up.
The highs are highs
and the lows are lows.
And there's nothing sadder
than when a comedian is by himself.
They painted him as the sad clown.
Those close to Williams
believe he had bipolar disorder.
They thought hejust committed suicide
for something related to
unhappiness, drugs, or depression.
And, of course, none of that is true.
On Robin Williams mind
before his death, money.
While it may seem strange...
People fill in the blanks,
so a lot of that was going on.
That last evening I spent with him,
he was completely sober, and not on drugs.
Butjust most troubled by
what he was going through.
I think it's important that
the truth comes out because
there was so many affirmative
things that Robin stood for.
And we want to believe in all of them,
we want to believe in him.
And there's a danger that his
suicide could occasion people
to think oh well, he wasn't
what we thought he was,
we didn't know him after all, but we did.
I felt like I was
somehow being loyal to him
by not speaking about the
struggles that we saw.
I think we felt like that
wasn't anyone's business.
And so the story is one of Robin being
at the mercy of something
that you could not control.
And even worse than not
being able to control it,
not even knowing about it.
It was not till October.
I was called in to sit down to
go over the coroner's report.
There were no surprises about
what was in his toxicology.
I knew my honey was clean and sober.
They sat me down and
said, essentially Robin
died of diffuse lewy body dementia.
What is that?
They started to talk about
the neurodegeneration.
He wasn't in his right mind.
He described how this,
with these lewy bodies
that were in nearly every
region of his brain.
It makes sense why he was experiencing
what he was experiencing,
cognitive movement,
they were all affected,
depression, a fear,
anxiety, hallucinations,
delusional thinking,
major sleep disorders, insomnia, paranoia.
I remember walking out
of that facility down
the steps outside and feeling,
now I had the name of it.
It was the beginning of understanding
what had really gone on.
I was talking to someone I'd met at ucsf,
and she said send me the last two years
of the medical records,
I'll get them to Dr. Miller,
and I know he'll be happy to see you.
Lewy body dementia is
a devastating illness.
It's a killer, it is
fast, it's progressive.
I'm looking at how Robins
brain had been affected.
I realized that this
was about as devastating
form of lewy body dementia
as I had ever seen.
Almost no area was left unaffected.
It really amazed me that Robin
could walk or move at all.
The disease is devastating,
but even more so
when you realize that Robin
did not have a diagnosis.
He did not know where these
new symptoms were coming from.
A disease becomes
progressively irreversible,
unstoppable, and always
fatal, always fatal.
But cures, we're far away from those.
It affects many people, and sadly
one of the outcomes is suicide.
If we had had the accurate diagnosis
of lewy body dementia, that alone
would have given him some peace.
His soul thrived here.
He grew up here, his roots were here.
I mean he started in Detroit but
he went to school here at redwood.
Robin could live anywhere he wanted,
and chose to live in a neighborhood.
Living in marin,
which is kind of like
north of San Francisco,
it's like, it's the idea.
This is it, I don't need to live.
I can't, I mean I don't do well in la
if I was living in a gated community.
He said I want to live
with people, I love people.
He liked marin, it's a
wonderful, beautiful place to live.
He would ride his bikes every day.
You run into him
walking his dog outside.
And you're like oh, he's
a totally normal guy.
Really not that different,
people walking dogs, saying hello.
He's just trying to be normal.
But then on the flip side
like, he's lived a crazy life.
You would never
know he was a superstar.
The throckmorton theater in mill valley
started doing the Tuesday
night comedy nights.
It was just comedy, yet it exploded,
and partly because Robin
Williams lived down the street.
So all of a sudden you've got an open mic,
more or less, on Tuesday that's drawing
250 people on Tuesday, every Tuesday.
The audience will go crazy.
And Robin would come up,
after I already had a show.
And we would do another
two hours of improv.
And this would happen all the time.
And he literally would
just get up at the end
of the night, and he would
just crush it with no content.
Nothing got him off as much as
being in front of alive audience.
And getting to just free float,
and let his brain take
him where he's going,
and react with the audience if someone
throws something in from
there, or just take what
he's saying and do 300 riffs on that.
His mind was just so fast.
I look out there, there's
a little kid out there.
I saw a three year old kid
who could barely use a fork or a spoon.
He's eating blueberries with his hands.
And all of a sudden someone
hands him an iPhone,
he was like.
When you're playing with Robin Williams,
you're not known for how
you neck and neck with him.
You're not known for how you beat him.
You're known for how you
just barely keep up with him.
Look up here Rick,
there's people on the hill.
Hi everybody on the hill.
Sermon on the mount.
Jesus at comedy day?
Jesus at comedy day.
I'll be back.
There'd be improvs wear
I'm on stage with Robin,
and we would sync up, and
to see that in his eyes,
that twinkle, that means we made it.
It's impossible to describe
genius, or comedy really.
You can analyze it, but I
went with him to the two days
and landed in recording
sessions on the Disney lot.
And watching him go back and forth
and do all of these characters.
Let's blow this Popsicle stand.
A doorstop would be a fabulous career.
Not bad, good night Alice!
Out of all of every pore of his being.
And he was so happy and joyous.
Hey, go get them you little crazy guy.
I don't care what I am, I'm free.
Offer void where prohibited
bylaw.
He'd go let's do that
again, I could do that better.
And they'd go what do you
mean you can do better?
He goes no just, let me just run it again.
I think I have an idea, you know.
And they'd go, you think you have an idea?
Good lord, oh my god.
I think the man has to flow.
He has to be able to come in there,
and go against the magic.
He's got his own magic,
and hejust hasn't
found it in himself yet.
Unnecessary use of
reptile, 500 year penalty.
Watching these technicians
desperately laughing
and crying, trying to keep up with him
and not screw up the dials while
they're witnessing true brilliance.
Enough about you, let's talk about her.
She's a honey, huh?
Come on, talk about the features,
her hair, her eyes, her shoes.
Be darling, be witching, beautiful.
When you're in the room
with Robin, it is full go.
Thank you.
Not at all.
Theodore Roosevelt, 26th president of
these United States of
america at your service.
He was a constant spark,
comedic spark, idea spark,
throwing in lines, improvising a ton.
Some of the biggest laughs are things
that Robin invented on the fly.
I remember many many days
where Ben stiller and I
would look at each other,
because we're just watching
Robin Williams, off the top
of his head, just go off.
And that kind of manic, wildly creative
bottomless pit of ideas, that mojo,
that ability, which was like a superpower.
I'd never seen anything like it.
The thing to know
about the brain is that
it's not static, the
connections are always changing.
We call it neuroplasticity.
So you have someone who has a stroke,
a part of the brain is
damaged, it's not coming back.
Some of those patients
get completely better
because the brain rewires,
it has this resilience.
And the determinants of resilience
we don't quite understand, but
high intellectual abilities
to begin with seem to go along
with that kind of resilience.
People who have great brains,
who are incredibly brilliant can tolerate
degenerative diseases better
than someone who is average.
The concept of reserve.
Robin Williams was a genius.
Robin was brilliant, he just new things.
But besides that, his
extrasensory perception
of life, and of people, and of
me, he was a master at that.
You could track it back to
two years before he left.
We'd go to the throckmorton all the time.
He always had an open invitation to go on.
And what started to
happen at around two years
is he started to feel like
he didn't want to go on.
He just wasn't as eager to
meet with people backstage,
or hang out too long in the green room.
It was getting a little bit briefer.
And he didn't, hejust,
there were more insecurities
cropping up for him about going on stage.
There were a couple of
shows where I was expecting
Robin to be there and he didn't make it,
for one reason or another.
So that confidence that he had,
and the ability to go on and play,
he just wasn't willing to
go there as much anymore.
It was starting to lessen.
That was concerning, something's off.
Someone is seemingly
performingjust as they had
for years and years,
and then all of a sudden
there's some very strange
thing that happens.
And that raises concern.
But then the next day they're okay again.
And then over time, those
dips become deeper and deeper,
and we have these fluctuations,
especially in the beginning.
The last thing they probably think of is
that it's a degenerative brain disease.
After that things
were, just life was busy.
He was working so hard on,
"the crazy ones," at that time.
And it was getting more
and more difficult for him
to remember his lines, and he was getting
more and more insecure
about his performance.
Silence.
I know that he was
sometimes having trouble
with his lines and stuff
up front, but he was really
always able to power
through, and be that guy.
And once you hit editorial you'd find
the Robin Williams that you
know and love was always there.
I propose we redo that 1972 spot,
and take a chance of making people feel.
For my projects we, we
really stick to the script.
But, when you have Robin
Williams it would be folly
not to let him do whatever he wants to do.
M sauce secret sauce m
m sauce you love it
sauce sauce you love it b
m Booty shake Booty shake
Booty shake Booty shake m
b you didn't give me
enough ketchup packets m
oh my god.
Every take would be different.
Ad-iibs, and these comic nuggets would
come from Mars, or
somewhere, Robin's head.
But a lot of them were gold.
So I think that he
may be a little slower
out of the gate, but he finished strong.
He'd managed to kind of power through it.
He'd get up and he'd become this guy
that you knew, remembered, and loved.
Can you be serious?
Well maybe for a second No see.
Sorry.
It's not easy to do a
network television show.
On top of that he had,
"night at the museum."
And he's doing double duty.
The third movie, the last movie,
I would say a month into the
shoot it was clear to me,
it was clear to all of us on that set that
something was going on with Robin.
That's an experience that
I've not spoken about
publicly ever.
We saw that Robin was struggling
in a way that he hadn't
before, to remember lines,
and to combine the right
words with the performance.
When Robin would call me at 10 at night,
at two in the morning,
at four in the morning,
saying is it usable,
is any of this usable?
Do I suck, what's going on?
I would reassure him.
And so I said you are still you.
I know it, the world knows it.
You just need to remember that.
My faith in him never left,
but I saw his morale crumbling.
I saw a guy who wasn't himself,
and he thought that was unforgivable.
Lewy body dementia
is particularly tragic
in the way that it increases anxiety,
increases self-doubt, causes delusions,
misbeliefs that have never
been present in someone.
And imagine how hard that is for someone
who doesn't even realize
that they're suffering from
a degenerative disease, something
that is slowly taking away
the function of neurons across the brain.
I think the thing that
made Robin most special
about this spectrum of abilities he had
was the solid guy in the middle.
That's who you are in the
middle of all that other stuff.
These things come and go, who are you?
Do you stay you?
What will you become?
We met on the day he
arrived in New York City.
Robin really was different,
I could see in the beginning.
Robin and Christopher reeve came into my
third year class atjulliard
as advanced students.
Christopher was my
roommate, and Robin became
very quickly my very best
friend that I ever had.
Yeah, we were hippies from space,
and he's an Ivy league preppy.
I'm telling you, the three
of us had some good times.
He wasn't a comedian back then,
he was a very serious actor.
I went to New York and
went tojulliard which was
classical training, but
very much to be a thespian.
For me it was a wonderful thing,
number one to be in
New York, but training,
and also to get that type of training
where you get the combination
of classical and the hardcore.
And he was so believable visually,
but as the way he used his voice.
Man he was amazing.
And it blew the faculty's
mind as well as the students.
But he was always funny.
We'd be rehearsing lines
and he would go off on
my liege, thou cough on thou knowest not.
And he would make up lines
in iambic pentameter.
But, of course, you know r
rated lines, x rated lines.
It was hilarious.
It was hard for him because there was
a lot of politics going on
atjulliard in that time.
He left at the two thirds of
the way through that year.
I would go
back to San Francisco,
and try and find acting work.
And then took up stand-up comedy as a,
'cause I couldn't find acting work.
Holy city 200 was
the clubhouse for all the comedians.
If you could get on a set when Robin
was promising to be there
that night, you were gold.
They packed the place.
Ladies and
gentlemen, Robin Williams.
He drained every scintilla
of laughter out of that crowd.
But when he did that
crazy stuff he did on stage,
I think it let everybody
else say, well heck,
told everybody else yes,
crazy stuff is acceptable.
Robin is doing this in the '70s.
I mean 10, 15, 20 years in some cases
before some of this is
happening elsewhere.
He even came down to
Hollywood and got up on stage
at the comedy store and the improv.
And it was like a land mine had come in,
I'm not a tuna, I'm not a tuna.
Is anyone here tonight on drugs?
Okay, a quick test right now.
If you are, it's okay.
Let me ask you for a
sip here, dear brother.
The reverend likes this stuff here.
He was performed at the comedy
store and he was hilarious.
I just watched him,
and I walked backstage,
and he was sitting on the
steps behind the stage.
I saw him sitting alone.
It seemed so extraordinary to watch a guy
completely demolish an
audience, and then seem
so distant from what he had just done.
No celebration, just like exhausted
from pouring out so much energy.
I got a phone call.
It was Robin.
He was up in Vancouver, and he was
working on, "night at the museum," three.
And he was he was having a panic attack.
And he could not calm himself down.
He's having such a struggle
rememberingjust one line.
If you're life depended on it...
Say that, say that, believe
it or not you took a town?
He got very frustrated.
I remember him saying to
me, I'm not me anymore.
I don't know what's going
on, I'm not me anymore.
His mind was not firing at the same speed.
That spark was diminished.
The joy was sometimes not there.
I had to work harder editorially
to create it on screen,
because it wasn't always
there in the same way on set.
And I didn't resent that.
It was more taxing, it took
a lot more time and energy.
But if that's what my guy needed,
then that's what I was gonna give my guy.
The one thing that did
bother me was the arm.
I'd frequently see him clutching his hand
close to his chest a little bit, or he'd
put it in his pocket and
kind of mask certain things.
We knew that he was fragile.
And the deal was sometimes
we had to let Robin
be alone, take a minute, catch his breath,
particularly at the end of shooting.
The last time I was
with him I was on set,
we were doing, shooting
a scene in a church.
It was called glory of love.
Thought I saw the box move.
And we had a room for him where he could
go between takes, and
I went into that room.
We talked a little bit about the scene.
And he asked a few times
how's it going, is it working?
But the subtext of it was
how am I doing, am I working?
His sense of security and
confidence in who he was
and what he was, there was
something eroding within him.
We didn't know what.
Yeah, you got to kill a little.
Because we knew he was getting tested,
he was feeling infirm or not himself,
and he was getting tested.
And I think that those tests included
brain scans and nothing was showing up.
It wasn't like he's my son
and I can say all right, time out.
I'm gonna pull you out of this because
you're getting sick,
and you need some rest.
And I don't care what the
teachers say, no no no.
He's signed up, these are
contracts you don't break.
This is this, this, and the other thing.
What can I do?
And Robin, he aimed to please.
Every day every minute,
he aimed to please.
If the studio or the
network came begging for
more interviews and more publicity,
he would always give it his all.
His intellect, his mental acumen
were or so beyond ours that
it could be compromised
a great deal probably,
and he would still be playing
a step ahead of the rest of us.
How much of the script
in the show is you...
23.5% improv.
Good, that's
exactly what I wanted...
She hadn't finished
the question yet, Robin.
But I knew where she was going.
The new dancing.
There's one dance number,
and it's a ballet.
So lewy body dementia, like
all degenerative diseases,
is a problem of plumbing and circuitry.
These degenerative diseases
are caused by misfolding
of proteins within neurons,
or the parts of the brain
that allow us to move, think, and feel.
We have 70 billion neurons,
they slowly disintegrate.
This bad protein, Alpha-synuclein,
relentlessly picks off neurons
in a specific neighborhood,
spreading through that neighborhood,
and then moves into different
neighborhoods in the brain.
And then finally it swept
across the entire brain stem.
Almost every neuron in that circuit
with sleep, mood, anxiety,
cognition has been affected.
And that is really the
late stage of dementia
with lewy bodies, the stage
that no one can get out of.
Soldiers have very
refined bull detectors.
And to see that instantaneous connection
that Robin was able to make.
Good evening, Baghdad!
Thank you!
What he understood
about the American soldier
was where they came from.
Some of these kids are dying,
they're getting wounded.
He had a way of connecting with them
that just made them feel so good.
He was there for them,
and they understood that.
There's combat hardcore stuff,
and then it's a lot of waiting around.
And it's that stuff where people need
things just to fight the boredom.
And that is most important.
And I think most people are just
kind of shocked that someone showed up.
Like why are you here, man?
Afghanistan's six times, Iraq five.
Yeah, it's crazy.
And you haven't fixed it
yet, that's disappointing.
You know from going there,
that's the best audiences in the world.
I do have a story.
I have, I've got a ton of them.
A young man who was
very seriously injured,
and his girlfriend had decided it was just
a little bit too much for her to handle.
And she had just left, and
she was not coming back.
She was on her way to the airport.
So we walked in, and you could
tell that he was in despair,
and how afraid that he
was in going forward
that he would never
have another girlfriend,
about what his life was going to be like.
And Robin pulled up the his
chair right beside his bed,
and started talking about fear.
He went into some very personal things.
I think we probably
stayed an hour and a half.
And we walked out, and Robin actually said
boy that was a tough one.
He said because for all of
us, confronting our fears
is a very difficult thing to do.
And he said I'm sure nobody ever
thinks I'm afraid of anything.
That was a big topic of conversation.
Was their spouse going to stay with them?
Were people going to be
looking at them differently?
He actually talked about
those kinds of things.
He was willing to sit and talk
about some of his own fears.
And I'll never forget one day and he said,
oh Elaine, that was a tough one.
And he said he doesn't
know that, but I have been
so close to what he was
talking about myself.
It was early may, and he came home.
And it was like a plane coming
in with no landing gear.
His resources were just spent.
We were supposed to go to some friends and
Robin couldn't, he
couldn't get out of bed.
It was becoming more of a normal that
Robin's not feeling well.
And I can't tell you why.
We're just gonna stay home.
His delusional looping
would just kick in at night.
We'd gone to a birthday party,
our dear dear friend mort sahl.
That night Robin was up.
And he started talking
about he was so afraid
that mort was not gonna
make it through the night.
And so we started to have
this discussion again.
It's like 12, one o'clock at night,
and it goes to like 3:30 in the morning.
And I mean it goes, we're
covering all the bases
because he's convinced that he should
go to mort's house right
now and make sure he's okay.
That night he was texting mort.
Like, are you okay, are you okay?
And mort's asleep, most likely.
And so because he wasn't
getting a response from mort
at two o'clock in the morning,
he wanted to go there.
So this was a typical night for us.
There is something wrong.
There is something not right here.
And he said I just want
to reboot my brain.
I just want to reboot my brain.
We started to see some physical things
happening to him, and he
was trying to hide it,
with his arm and things like
that, so we started to see it.
One point he came up,
and he was in a t-shirt.
His ribs were actually showing.
I grabbed his skin.
Robin you're really getting thin.
He said yeah boss, I've
gone to the doctor.
But I don't know what it is.
When he came to a party,
and we were all there,
the comedians were, they were flummoxed,
they were overwhelmed.
And he was off lurking
in the corners alone.
I mean can you imagine?
You're at a party, and where's Robin?
You look and he's over in the corner,
fiddling around with a
bush or something like.
Well this is not good.
He was suffering, and you could tell it.
I tried to get him
to go to a James Taylor
concert with us, and he
says I don't think I can.
I go, I mean I know you're
tired but I'll drive,
and I'll come get you,
and the ticket's on me.
He goes no I don't think
I can leave the house.
And that kind of scared me a little bit,
because he was serious,
like yeah well okay.
And I didn't really press him on it.
But I mean he was leveling with me,
that I don't think I could
leave my house right now.
And his speech patterns
changed a little bit.
But I don't, it's hard
for me to talk about.
I knew there was something going on.
I spoke with Robin almost
every day, or text and stuff.
I witnessed his processing
reality completely
different than the way everybody else.
And it just, the only
reason I talk about that is
his brain was giving him misinformation,
complete misinformation.
Going from where Robin and I had
our world together,
that was our sanctuary.
It's so lovely to see that
you're so happy and everything.
How did the two of you meet?
Seriously?
Outside an apple store.
It was a busy Saturday, I
had to go to the apple store.
And I started heading to the back,
and I see this man dressed in camo.
He was just smiling at me.
And I thought, I think
that's Robin Williams.
And I thought, all right
I'm just gonna go say hi.
I had camo pants on, and she said
how's that camo working for you?
I went, really good
obviously, you thought.
We just started talking and
we had the connection of 12 step stuff.
We both had crazy
drug and alcohol days
earlier in our lives.
He knew enough information
to be able to find me
if he wanted to, at one of
the regular 12 step meetings.
The next Tuesday night, I
was at my regular thing.
I looked around the
room, I didn't see him.
I thought oh well.
Midway through the
meeting I turned around,
and there he was in the back of the room.
Then I turn around real quick
and thought oh my god, he's here.
But it was kind
of sweet, and then I was
like off and running, it
was kind of wonderful.
He told me met this girl
and she knocked him out.
He told me it was his love.
You know men don't usually
say that to each other.
Yo, most beautiful.
Good morning, good morning, good morning.
I'm just sending you gigantic love.
And I hope you're wonderful.
I imaging right now your
hands are covered in paint.
Oh, lucky hands.
Paint on, paint on my little Picasso.
Paint paint, paint paint.
Louisville signing off, bye.
My partner in crime, who
we've been walking sober,
clean sober together and enjoying
all the rawness and
authenticity of life together.
Like, this is Susan and
Robin, and it was great.
They were like
I'm going to raise up.
Let me lift myself up to love.
We just had a theme, a
way of approaching life
that was so in sync, we just
were like two little kids.
We were looking at the world together,
almost like through each other's eyes.
That was like having a best friend,
where you could really
explore life together.
Yeah, we dated for about four years.
We'd had promised rings that
we'd worn for a year already.
Doesn't everybody do
promise rings?
I don't know.
We knew we wanted to get married.
October 22, 2011.
It was storybook.
Wow, I'm just picturing him.
He sure looked good.
Part of my wedding vows
was really all about
loving him as he is, I have
no desire to change this man.
And you had
your honeymoon in Paris.
It was wonderful.
The great thing is in Paris, see,
all the paparazzi like
wildlife photographers.
All of a sudden you look over
they're like, Robin kiss her.
Kiss her first good, no get away from me.
Kiss her, kiss her, do it now.
The comedian will now attempt
to kiss the tall woman.
He had come home from,
"night at the museum."
He was basically home for a week.
He was exhausted, absolutely exhausted.
We were looking at like a week of testing.
The calendar was just booked.
So we had this day at
the beginning of it all.
I said why don't we go
out to Tennessee valley,
go on a walk out there, which we loved.
We just loved our walks.
This is when I realized my honey
had never ever been on a picnic.
It was a pretty windy day.
But as we got out there there
weren't a lot of people and
it was so nice to have
space around us in nature.
We went over to the rocks
and ate our sandwiches.
And it was just us, and it was peaceful.
It was one of those moments
in the midst of this
frenzy of trying to find
out what's going on.
Like the drumbeat was
getting more and more.
And he was depleted,
he was so so depleted.
And hejust put his head down in my lap.
And I just stroked his hair.
He just laid in my lap
for like a couple hours.
Oh that guy was tired.
So the first time the
Robin came into my shop,
it was in 1983, and it was
shortly afterjohn belushi died.
Whenjohn belushi passed away,
it devastated Robin.
John was crazier than anybody.
And but man, did he pay the price.
It hit him like a sheet of cold ice.
He pulled out of a dive.
He stopped everything but
white wine for one year.
And he didn't go to aa.
And I mean wow, how are you doing this?
He goes just because I have to.
He didn't want to die.
And of course he'd
always been really physical.
He was an athlete, he was a good athlete.
He took up cycling, and he
started riding more and more.
And we started seeing him more and more.
You are a keen cyclist?
Yes sir, I am a bike-sexual.
Yes sir, I like to ride the bike.
I mean for me it's my meditation.
It's what I do, I can get
on my bike and ride about
sometimes 20 miles,
sometimes 40 or 50 miles.
And it's great, it's beautiful.
He said that cycling was
the closest thing to flying.
And it allowed him to free himself
from all the things that
went on in his mind,
because his mind was so active, right.
Robin and running, and
biking was always in struggle.
You have to push yourself, you
have to challenge yourself.
And Robin, as an artist,
challenged himself to do roles
that were like stretching himself.
He wanted to prove that he wasn't
just a comedic actor, he was an actor.
When you're improvising,
you're going out, you're looking.
I'd be going, talking to flowers?
And how you doing, please cough.
When you're playing like
that, you're going out.
But by stopping that it
forces the energy to implode,
and you find you explore yourself,
either memories or different emotions.
Captain, my captain.
Sit down, mister Anderson.
"Dead poets society,"
almost didn't happen.
Because they really just
wanted him to do it.
The writer asked me how could we get Robin
to reconsider this, and maybe do this?
I said well, you need to involve
him in the creative process
and at least give him a voice
in choosing the director.
I said make him a shortlist.
But Peter Weir was at the top of it.
And he said I'm in if
you can get Peter Weir.
And it happened.
Thank you, boys.
Yeah, he gave me a sweet gift.
When he's looking at the yearbook
from when he was a student.
Gentlemen.
We were just looking your old annual.
Then the kids show him this yearbook.
He gets down on his knees, and just.
No, it's not me.
Stanley, the tool, Wilson.
Stanley, the tool, Wilson.
Which was his nickname for me.
What's the dead poets society?
So I'm sitting with him at the premiere,
next to the heads of
Disney and he's smiling,
and he wouldn't look at me.
But I started crying when this came on.
And that was his thank
you to me for helping.
And he was brilliant.
Invincible, just like you feel.
The world is their oyster.
He always wanted to
push himself, he did.
And I think that's incredibly admirable,
because you don't have to do that
when you're wealthy and famous,
and people the world over love you,
and want you to make them laugh.
We liked to go play
basketball with a local group
that helps developmentally
disabled adults.
His neurologist, who also attends that,
had not seen him since December.
When the suspicion about
his, the shaking of his hand,
it was keep an eye on
it, but at that point
it was so minimal maybe it's because
of this previous shoulder injury.
Well basically that
night, that doctor made
a visual diagnosis from way across court.
All he knew is that we were
gonna be going in to see the gp,
when he was told he had Parkinson's.
And they're saying it's early to mild.
And that's great, so okay
we get on medications.
We'll figure this out,
you'll get it adjusted.
They were saying 10 good years.
I could see he wasn't buying it.
Robin got to ask these questions,
which at the time seemed like,
he asked am I, do I have an Alzheimer's?
Do I have dementia?
Am I schizophrenic?
And the answers were no, no, and no.
The real depth of these
symptoms, he only knew.
The rest of us were
working with what we could.
In Robin's case there was
a focus on his movement,
but I think internally for
Robin, this was only a tiny part
of the symptoms that he was experiencing.
Another very early feature of dementia
with lewy bodies is visual hallucinations.
They often believe that these
hallucinations are real.
So for Robin, learning that he
had Parkinson's disease was not enough.
He's an old friend of
mine, and a former classmate
atjulliard school in
New York, Robin Williams.
I'd like to give you that.
Look at that.
Boy, somebody's fantasy.
Robin and Christopher
were very good friends.
Christopher is a preppy for viewing,
although that was our
slightly younger brother.
The three of us were brother Williams,
brother Wilson, and brother reeve.
Christopher, we went to see him when
he first had this accident.
He'd just had the accident and
there were people making decisions
whether or not to keep
him on life support.
Robin went in disguised as a
doctor in the emergency room.
I said I was a Russian proctologist.
And most of the other doctors went, oh no.
And he looked up, and he kind of
went hey brother, what's up?
And I said would you mind?
I'm just gonna do a brief exam.
Like what you said, if you feel
two fingers it's your luck.
And he laughed.
And he said hey brother, what's happening?
And it was that idea of
even in the face of that,
and it helped, I mean
he's an extraordinary guy.
First one to show up down in Virginia
when I was really in trouble.
He came here to Kessler
one afternoon, and just.
Thank god I wear a seat belt in his chair,
because I would have fallen out laughing.
When Christopher, we went to see him
when he first had his accident.
We both talked and said I
never knew he was this strong.
And Robin didn't either,
and he says I don't think
I could go through that,
and I wouldn't want to.
He looked very frail when he
came back from the museum picture.
He used to come over like every afternoon.
He'd sit in that chair in the corner.
He mumbled about it but,
he never described this severity
to me of losing everything.
I'd trick him, even when he got depressed.
I'd say, well a lot of times
I want to jump off the roof.
Really, he'd say.
But, I said yeah.
I said you can'tjump off the roof because
you can't leave Susan alone.
And as soon as I got
anywhere near saying her name
he'd go ooh, ooh, admiration all the time.
That's the thing he
kept getting over to me
all the time and saying,
now I finally got it right.
So he saw tremendous irony
in getting sick.
He had these introspective moments,
and a lot of depression as it approached.
But he didn't verbalize that to me and,
he just wasn't laughing a lot.
People believe that there is psychology,
and then there is neuroscience,
and they're not the same.
But in fact it's all related to
how our brain circuits are working.
This is very hard for our society
to understand and grapple with because we
have a different way of thinking
about psychiatric disease.
There's not a realization
that the chemical changes
in the brain are responsible
for the psychiatric symptoms.
Lewy body disease, it is brain
circuits that cause troubles
that people assume are behavioral,
not potentially related to a disease.
Someone has Parkinson's
disease, and they have shaking,
and they can't walk then,
oh that's clearly a disease.
But, in fact, it's pure
semantics, there's no difference.
It's just different
circuits are being affected.
It flows over someone
like a massive wave.
No matter how moral, ethical,
good, brilliant someone is.
When they get disease of
the magnitude of dementia
with lewy bodies, they get very sick,
and they change enormously
in a psychiatric way.
It affects sleep very early.
This is another very hard
part of lewy body disease.
When they're asleep they suddenly act out
their dreams we call rem behavior.
They can strike out during a dream
and actually hit people at night.
The lack of sleep had been building
very intensely since December.
He's thrashing at night now,
which is a parkinsonian type symptom.
So now what was happening,
you know when you first fall
asleep, you start to go deep
pretty quick if you're tired.
He would go honey, what
did you think about,
like in a daytime voice, was loud.
No one was getting sleep, it was just
impossible because of
the delusional looping.
And then the degree to which
the paranoia came in, it was so drastic.
He's just going from room to
room, literally watching me.
He's making a lot of phone
calls and texting people,
and questioning, I'm
sure I know it was a lot
about questioning my loyalty to him.
And then I'm like back in the
studio, and he's watching me.
And he's standing there
in a frozen stance.
And he wasn't moving.
And then he'd come out of it,
and he was so upset with himself.
There were other scenes going on for him,
there were other ideas about us.
What part of this is is free will?
He had this awareness of what
he was doing, and that pained him.
Because he knew it wasn't
us, it wasn't right.
There's that core of
that person that is still
completely maintained, and
they struggle with this.
And they struggle with
how they're changing.
And they often don't have a good logical
conclusion about it, so it's very hard.
Robin is not getting enough sleep.
The therapists are like,
not getting sleep can be really dangerous.
When we were told to sleep apart
because he needed to get sleep,
he came to me and he said,
does this mean more separated?
For someone so brilliant
to say something like that
is such a mismatch of reality.
Five minutes later he
was back, and he realized
no we're in love and we're married.
There's no, I'm not leaving him.
Robin was in the house
visiting and he wanted
to look out the back window,
look at our boat dock,
and our boats, and get a different view.
And so he looked out the back window
here out of our sunroom.
He stood there, and stood
there, and stood there
for about 10, 12 minutes motionless,
didn't say a word, just
stood there and looked
for the longest period
of time, way too long.
I finally said Robin,
let's go back outside.
In the middle of the storm,
we kept trying to stay in the center.
By now though we were seeing
the therapist every day.
It's bike rides, it's 12 step work.
Meditating together helped a little bit.
We went to a hypnotist at Stanford.
And god bless the man, he did everything.
I would come in the room
and he'd be sitting there
doing this thing, and it was part of
the deal to like hypnotize yourself.
It kind of worked a little
bit, but it would always
be temporary, but he would keep trying.
He was a freaking warrior.
The way that he was able to
battle the inner turmoils,
the inner fears, he was blessed
with what his heart was capable of.
In the midst of fear.
Go your whole life never
knowing how you look,
and then there you are.
You get hungry, you get
stupid, you get shot and die.
Then you get this quick
glimpse of how you looked
to others, to the world around you.
It's never what you thought.
He could do what nobody else could do.
He'd do what very few artists
have ever been able to do.
He was just, he was beautiful.
I remember the day I
found out, I was thrilled.
Robin Williams is gonna come do,
"bengal tiger at the Baghdad zoo."
He's the tiger.
The fact is tigers are atheists.
All of us, unabashed.
Heaven and hell, these are
just metaphorical constructs
which represent hungry and not hungry.
I would see him waiting after the play,
after we come out from a
two hour and 20 minute show.
And he's waiting for every single person
to get their picture, and
to sign their play bill.
And I learned Patience,
and I learned compassion.
He's everything you want
from a fellow artist.
I'm hot in the green
room at mill valley.
He'd go in and extend these mercy calls
to the comedian's in the green room.
They all looked upon him as a hero.
And he's more than generous.
Wait, can we get you doing
the guy who hit our car today, please?
No dude, no dude, no, it's nothing.
Dude, you
hit my rental car, man.
No dude, I did but nothing happened.
It's like we've been here
before but nothing happened.
Do you have insurance, maybe?
Not at all, thanks.
That last bike ride with Robin,
I asked him at the beginning
of the ride, you look beat.
Are you sure you're okay for
a ride, you look exhausted?
He said no he needed
it, he really needed it
and was ready to do it, but
it was clear he was off,
off in a way he had not
ever been off before.
Much slimmer, just sort of not there.
A couple of times he was over in the Lane
way more than he should have been,
way more toward the center of the Lane.
He asked a lot of weird questions,
seemed oddly distracted.
Turn around and he'd say stuff
like, what time you got boss?
Never asked me that on a ride ever before.
I'd day I don't know, we left at one,
we're halfway through, 1:30?
Thanks boss.
30 seconds later, what time you got boss?
45 seconds later, the same question again.
There were several other questions he asks
that were sort of odd,
and didn't make sense,
something along the lines I think
we should maybe be getting back.
Yeah, we took one loop,
we're getting back,
that kind of stuff.
Before you notice it,
he started to leave me.
He just was 20 yards, and
then 40, and then 100.
This has never happened on a ride.
And all of a sudden he
was 100 and some yards,
and I couldn't catch him.
I busted butt to catch
up, I couldn't do it.
I mean he pedaled all
the way to the house.
And we got to the house and he said,
hope you don't mind boss,
but I got to get in today.
I got stuff to do.
And I said fine, and he
hustled in the house.
Uncharacteristically,
around 9:30 in the evening,
Carol noticed Robin and
Leonard standing out front.
I went outside, and I asked
if everything was okay.
And he said yes, I'm okay,
just sort of a pat answer.
And then he said boss,
I really need a hug.
And so I gave him a hug.
And he started to cry at that
point, put his head down.
Sol put my arm around his shoulder.
And then I asked him
Robin, Robin, are you okay?
Is anything wrong that I could help?
Are you in pain?
He said, no boss.
He talked about family, and
what was going on in his life,
and some things that I think
he felt I would keep private.
It took about 15 minutes,
he said, bye boss.
I said I'll see you
tomorrow, and he walked home.
We were gonna try to get
to bed at a decent hour,
and we stayed up for a little while,
which is what we did that week.
When sleeping apart,
it's like well, we'd stay
in our bed together until
it was time to go to sleep.
Again, I'd read to him.
Then it was just time, it
was time for sleep and he,
he went into his office,
which is right by our room.
And he went back there a
couple times to get things.
And I saw he had his iPad, and
I thought this is really good
because he hasn't wanted to read,
or do anything in along time.
We just said goodnight
to each other, you know.
Good night my love.
Good night my love.
We'd been meditating
every morning together,
so when I got up and he wasn't up yet,
I thought oh my god the door
still closed, he's sleeping.
He's sleeping, this is really good.
His assistant showed up,
'cause I had some work stuff to go over.
And I had to take off,
and I just told her,
I said text me when he's awake.
Apparently he had slept in.
And they couldn't figure
out why he was sleeping in,
because it kind of wasn't him, right.
And they tried to go in the
room, and it was locked.
Then I got a text saying
he's not up, what should I do?
I knew, I just knew there was something
terribly terribly wrong,
that wasn't right.
And I just texted, wake him
up immediately and call me.
She called me back.
Susan had just come back.
Dan and Rebecca were outside the house.
The police were showing up,
and they didn't know what was going on.
Sister came in the kitchen
and said how are you?
And I said I'm fine.
She goes oh so, oh my god you don't know.
And then she told me.
I was upset with a Tsunami of grief.
I'm driving back on
this day three years ago,
and a reporter from a tabloid
called me on my phone.
I don't even know how they got my number.
And said do you have any comments about
the death of your friend,
Robin Williams, by suicide?
And I threw my goddamn phone
across the car and kept driving.
I remember very distinctly,
we were standing out front,
and you could hear a helicopter coming.
He said, okay here they come.
Whole bay area
felt like a sledgehammer
had hit it in the head
that day, and New York too,
and Hollywood, and everywhere.
It was like a war zone,
helicopters circling,
news vans pulling up, there
are big satellite dishes,
and they're all setting up cameras,
they're knocking on our
door asking for comment.
It got pretty crazy around here,
like the global media descended
on this little cul-de-sac.
How everybodyjust wanted their peace.
We felt that it was a
huge invasion of privacy.
This was a horrifically
tragic event to happen
to normal people that are our neighbors.
We also had fans of Robins that
just wanted to come and pay tribute.
And they would stand peacefully
in front of his house,
and lay flowers down, and
just pay their respects.
It's like really having
a limb or something ripped from you,
and you can't heal it right away.
I just, I remember walking
out of that facility
down the steps outside and feeling
the last year and a
half of really hard work
that my husband and I went through,
I had the beginning of an answer.
I started digging in
for about the next year.
You can't come back
from lewy body dementia.
There is no cure.
Depression you can come back from.
He had come back from
that earlier in life.
Clumsy as it was, not in
the right state of mind,
due to the tricks that
the disease plays on you.
And the lack of sleep, and the everything.
But I think hejust probably,
somewhere in his brain decided
I don't want to bring
everybody down with me.
I don't want to spend a year
or two going down this path.
Maybe he didn't have quite
that level of consciousness,
but knowing Robin, I want to ride my bike,
I want to be with my beautiful
wife, I want do comedy.
These things will probably all be
off the books in a very short time.
I just know that he finally one day said
I'm not gonna go where this is taking me.
But he's just so joyous, and then
there would have been nojoy in his life.
No, he wasn't ready to go,
he wasn't ready to go at all.
And he stuck around longer
than he felt like it.
I mean I just know him, because he wasn't
ready to say goodbye to Susan, or to life.
When someone gets sick like that,
because it's so confusing, it's
not their heart that's sick.
It's the mainframe, it's the computer.
And that's very different, very different.
Lewy body gives nobody
a chance to prepare.
The psychiatry is the disease,
it's the manifestation of
the disease in the brainstem.
I think in this country
this is a big problem
that mental health and
neurology are seen as separate.
In fact, it's all abnormalities
in brain circuits.
When your brain is not functioning
to allow you to be a
fulfilled human being.
There's a tendency to blame people
for their behaviors and their illness,
and a certain mindset
around disease that people
are responsible for their
own disease, they aren't.
I think there's a blame free world,
just like when someone
has cancer, no blame.
Robin Williams
widow is speaking out
about the beloved comedians tragic...
Speaking out for the first
time since he took his life...
Susan Williams is breaking her silence.
It's been a year since his death.
I see you're still
wearing your wedding ring.
How are you doing?
I'm doing okay.
It's been a year of grieving,
and it's been a year of really
trying to get to the bottom
of what killed my husband.
Susan Schneider Williams wrote
an editorial for thejournal, "neurology."
For her first TV interview
since writing about
Robins health struggle.
People think your husband
killed himself because he was depressed.
Everyone thought that
he died from suicide
from depression, but that wasn't the case.
No, Robin did not die from depression.
Robin had a deadly disease,
and it's called lewy body dementia.
Everybody deals
with grief in their own way.
The part that needs the focus
and attention is let's cure this disease.
No one should have to go through that.
No one should have to
feel the level of pain
that Robin felt, and he's one of millions.
But what she's done
is educating everyone
that cares to know what really happened,
the real story about his last year.
Autopsy
reports diagnosed Williams
with diffuse lewy body dementia.
Lewy body dementia.
To a form of dementia.
He had what's
known as lewy body dementia.
Which was
discovered only after his death.
When you don't have
a diagnosis, and you're
going down these trails of trying
to find out what's
going on, that is scary.
The terror of where's this coming from?
Robin asked do I have
dementia, am I schizophrenic?
And okay now, right, is that clear or not?
This is what other
families are going through,
an example of what's
going on in many lives.
Having a diagnosis would
have meant everything.
Doing the press for that
last movie was really,
I mean it was very
complicated emotionally.
And to be really blunt, I'm
really proud of the fact that
there were 200 people
on that set every day.
And not one of them spoke to anyone ever
about the struggles we saw Robin enduring.
But it no longer feels
loyal to be silent about it,
but maybe more loyal
to share without shame,
without secrecy, that
yeah this guy was hurting.
He was going through something that
he didn't have a name for yet.
And it doesn't bring Robin
back, but it does give clarity.
Because a completely new
variable was entered late into
the equation of Robin Williams
life, which ended his life.
The Robin that we watched all those years,
the man who put himself out there,
the man who went overseas
to entertain troops,
the man who would entertain
the crews on the sets,
the man who'd hug and
hold on to his friends,
that was very real.
After he left, in his bedside table,
there was a few items, just a few things.
And every once in a while I
would pull that drawer open
when I missed him, andjust
wanted him to tell me something.
I opened up that book, and I was like wow.
I remembered that when we were talking
about what we wanted to,
what we wanted to be able
to leave as our legacy.
And for Robin it was that he wanted to
help people be less afraid.
When you get to know
Robin, just as our friend
and our neighbor, like all of us knew him,
that's one thing, but when you actually,
there's a realization about the impact
that he had on a global basis.
The last scene for the
night at the museum franchise,
is Robin and Ben stiller
saying goodbye, and knowing
that they are probably not
gonna see each other again.
That was the scene.
We didn't realize that that was real life.
It's time for your next adventure.
I have no idea what
I'm gonna do tomorrow.
How exciting.
Bye, Teddy.
Farewell, Lawrence.
If you saw his movies, Robbins movies,
you saw one side of Robin.
But the biggest blessing is
who he was as a human being.
He was a loving soul,
and that was who he was.
He was totally open, you know.
And he understood the bigness of love.
Oh man, this guy, I mean I
feel around him all the time.
There'll be a moment when
I just burst out laughing.
I hear his voice in my ear.
It's just one of the joys
of my life, if not the.
I mean that was the best friend
I ever had, I mean truly.
It was just the, it was
the ride of a life, man.
I just love him so much.
Yeah there's a sadness
and then you have to go,
then there's also, there's also hope.
Sadness is always like,
you wish they hadn't
happened but they did.
And the purpose is to make you different.
It's what they call the Buddhist gift.
It's that idea of you're
back, and you realize
the thing that matters are others,
way beyond yourself.
Self goes away, ego bye bye.
You realize there are a lot, a lot of
amazing people out there
to be grateful for,
and a loving god, and that,
other than that, good luck.
That's what life is about.